I submitted the following essay to The Cannabist last Friday in response to Season 3, Episode 9 of The Cannabist Show. Ultimately, editor Alex Pasquariello decided it wasn’t a fit for their publication, noting in his response that, “as your submission observes and a cursory Google search reveals, EDS is an incredibly complicated medical topic,” and suggested that I submit it as a comment on Facebook.
This past week has been one of the most difficult on record. It began with preparing an application for a position I hoped to fill, while navigating the complexities of my expanding disability with a new potential employer.
Lifting a 14-pound child, radical weather changes, rising levels of acute pain, and emerging chronic fatigue symptoms are changing my daily routine. This is the second post in a series covering what it’s like to live with Ehlers-Danlos Syndrome (EDS), a complex, life-long genetic condition that often causes serious, chronic pain and frequent subluxations among patients.